{"id":2053,"date":"2020-08-26T10:41:24","date_gmt":"2020-08-26T08:41:24","guid":{"rendered":"http:\/\/kibodan2.i-strategi.pro\/unkategorisiert\/ich-werde-nicht-an-der-krankheit-sterben-aber-mit-ihr\/"},"modified":"2021-09-07T12:22:15","modified_gmt":"2021-09-07T10:22:15","slug":"ich-werde-nicht-an-der-krankheit-sterben-aber-mit-ihr","status":"publish","type":"post","link":"https:\/\/kibodan.com\/de\/interviews-de\/ich-werde-nicht-an-der-krankheit-sterben-aber-mit-ihr\/","title":{"rendered":"\u201eIch werde nicht an der Krankheit sterben, aber mit ihr\u201c"},"content":{"rendered":"<p><em>&#8222;There is no one in my family who has the disease.\u00a0So why did I get sclerosis? I have lived a normal life\u00a0with\u00a0my husband, 2 children our dog etc. Then, suddenly &#8211; bang.&#8220;<\/em><\/p>\n<p>This\u00a0month\u00a0we have\u00a0chosen\u00a0to focus on\u00a0Multiple Sclerosis (MS).\u00a0We\u00a0have\u00a0interviewed a member of the Sclerosis\u00a0Association, who\u00a0suffers\u00a0from multiple sclerosis. We have talked about her background, what sclerosis is and how it affects both\u00a0her and her\u00a0relatives.<\/p>\n<h2><b>Background<\/b><\/h2>\n<p>Jette is in\u00a0her\u00a060&#8217;s and\u00a0was diagnosed with\u00a0multiple\u00a0sclerosis in 2001.\u00a0Jette had been in pain for some time, when she consulted a doctor. She\u00a0found out she had been infected with\u00a0Borrelia bacteria, due to a tick bite. The bacteria\u00a0had infected\u00a0her\u00a0spinal fluid around the central nervous system.\u00a0Eventually,\u00a0after a\u00a0MR scan,\u00a0the\u00a0results\u00a0of which\u00a0were not enough to make a\u00a0conclusive\u00a0diagnosis. It took the doctors another\u00a03 years before she\u00a0finally\u00a0got her diagnosis.<\/p>\n<p>Jette lives\u00a0in Copenhagen.\u00a0She\u00a0is\u00a0retired and\u00a0volunteers\u00a0at\u00a0the Sclerosis Association,\u00a0and\u00a0amongst\u00a0other things Jette\u00a0does the\u00a0bookkeeping\u00a0for the Sclerosis Association\u00a0Copenhagen\u2019s\u00a0major events such\u00a0as Walk and Talk 2018.<\/p>\n<h2><b>What is Multiple Sclerosis?<\/b><\/h2>\n<p>MS is an incurable\u00a0chronic\u00a0neurological disease that enters and affects\u00a0the central nervous system causing pains and spasms,\u00a0cognitive\u00a0problems and loss of\u00a0balance\u00a0amongst other\u00a0symptoms. The most common\u00a0form\u00a0of sclerosis is\u00a0relapsing-remitting MS\u202fand is\u00a0characterized\u00a0by repetitive attacks from different parts of the central nervous system, causing the\u00a0sufferer\u00a0to experience\u00a0physical\u00a0disturbances\u00a0and loss of control. About 8 out of 10\u00a0sclerosis\u00a0patients\u00a0are diagnosed with this\u00a0form\u00a0of sclerosis.<\/p>\n<p><em>\u201cYou lose control of your body and\u00a0there is nothing\u00a0you can do. You&#8217;re just lying there\u00a0with\u00a0the feeling of\u00a0pins and needles\u00a0in your arms and\u00a0your\u00a0legs and\u00a0everywhere else\u201d<\/em><\/p>\n<p><em>&#8222;Once my husband drove me\u00a0to my weekly exercise class and we walked down a\u00a0spiral staircase\u00a0\u2013\u00a0I didn\u2019t\u00a0have\u00a0any problem walking and then suddenly\u00a0I couldn\u2019t move. Seconds\u00a0later\u00a0I\u00a0was\u00a0lying\u00a0at the\u00a0bottom\u00a0of the staircase.\u00a0I\u00a0had injured\u00a0my right ankle and now I can\u2019t feel my two\u00a0smallest\u00a0toes &#8211; I\u00a0no longer\u00a0have\u00a0any tactile sense in them at all. \u201c<\/em><\/p>\n<h2><b>How does sclerosis affect you in your daily life?<\/b><\/h2>\n<p>Jette used to work in a bank where she was\u00a0a \u2018Pension and investment officer\u2019. The effect of the\u00a0disease\u00a0meant that she eventually had to give up her responsibility.\u00a0She\u00a0joined\u00a0the Danish\u00a0programme\u00a0known as\u00a0flexjob, which\u00a0consists of a\u00a015-hour\u00a0workweek.<\/p>\n<p><i>\u201c<\/i><i>Suddenly my eyes wouldn\u2019t work anymore<\/i><i>,\u00a0<\/i><i>and I had to\u00a0<\/i><i>squeeze t<\/i><i>hem<\/i><i>\u00a0completely\u00a0<\/i><i>to\u00a0<\/i><i>see\u00a0<\/i><i>the\u00a0<\/i><i>computer<\/i><i>\u00a0&#8211; I\u00a0<\/i><i>could<\/i><i>n<\/i><i>\u2019t<\/i><i>\u00a0distinguish\u00a0<\/i><i>between the\u00a0<\/i><i>lines\u00a0<\/i><i>\u2013\u00a0<\/i><i>That is when I r<\/i><i>ealized that I couldn\u2019t work anymore, because you cannot recommend investments to people, when you can<\/i><i>no<\/i><i>t see the screen<\/i><i>\u201d<\/i><\/p>\n<p><i>\u201c<\/i><i>I<\/i><i>\u00a0had to do something\u00a0<\/i><i>beneficial<\/i><i>fo<\/i><i>r<\/i><i>myself,<\/i><i>\u00a0so I started training 3 times a week. I was in the water once<\/i><i>\u00a0a week<\/i><i>, then going to the gym\u00a0<\/i><i>and\u00a0<\/i><i>then<\/i><i>\u00a0yoga<\/i><i>\u201d<\/i><\/p>\n<p><i>\u201c<\/i><i>You must\u00a0<\/i><i>keep yourself busy<\/i><i>, otherwise you will\u00a0<\/i><i>go mad<\/i><i>being\u00a0<\/i><i>home al<\/i><i>o<\/i><i>ne<\/i><i>\u00a0when you have been used to<\/i><i>\u00a0so many people around you\u201d<\/i><\/p>\n<h2><b>How did your family<\/b><b>\u00a0handle<\/b><b>\u00a0<\/b><b>your\u00a0<\/b><b>diagnos<\/b><b>is<\/b><b>\u00a0and how\u00a0<\/b><b>are<\/b><b>\u00a0your family and\u00a0<\/b><b>your\u00a0<\/b><b>nearest affected by the disease today?<\/b><\/h2>\n<p><i>\u201c<\/i><i>M<\/i><i>y children\u00a0<\/i><i>were very sad<\/i><i>, they t<\/i><i>hought<\/i><i>\u00a0it was terrible. My parents\u00a0<\/i><i>were still alive<\/i><i>\u00a0<\/i><i>at th<\/i><i>e<\/i><i>\u00a0time<\/i><i>\u00a0and they thought it was even worse.\u00a0<\/i><i>My\u00a0<\/i><i>husband was more worried than I\u00a0<\/i><i>was<\/i><i>\u00a0because I\u00a0<\/i><i>told myself<\/i><i>\u00a0that if\u00a0<\/i><i>I<\/i><i>\u00a0<\/i><i>wanted<\/i><i>\u00a0a life<\/i><i>,<\/i><i>\u00a0then\u00a0<\/i><i>I<\/i><i>\u00a0ha<\/i><i>d<\/i><i>\u00a0to keep planning<\/i><i>. You have to tell yourself<\/i><i>\u00a0that in 14 days we will do this, and you may end up caving<\/i><i>\u00a0and cancelling your plans<\/i><i>, but you\u00a0<\/i><i>have to\u00a0<\/i><i>keep going<\/i><i>\u201d<\/i><\/p>\n<p><i>\u201c<\/i><i>You\u00a0<\/i><i>have to keep<\/i><i>\u00a0travel<\/i><i>ling<\/i><i>, because\u00a0<\/i><i>your life will suddenly become<\/i><i>\u00a0very limited<\/i><i>\u201d<\/i><\/p>\n<p><i>\u201c<\/i><i>My h<\/i><i>usband took it\u00a0<\/i><i>hard<\/i><i>,\u00a0<\/i><i>because\u00a0<\/i><i>he<\/i><i>\u00a0<\/i><i>never kn<\/i><i>ew\u00a0<\/i><i>how the morning w<\/i><i>as going to\u00a0<\/i><i>go<\/i><i>.<\/i><i>\u00a0<\/i><i>Suddenly\u00a0<\/i><i>I would have a relapse<\/i><i>\u00a0and<\/i><i>\u00a0when\u00a0<\/i><i>I had one of my episodes<\/i><i>,<\/i><i>\u00a0<\/i><i>he<\/i><i>\u00a0would<\/i><i>\u00a0<\/i><i>be<\/i><i>\u00a0s<\/i><i>o<\/i><i>\u00a0worrie<\/i><i>d<\/i><i>. It was\u00a0<\/i><i>hard\u00a0<\/i><i>for him, but he was also my big<\/i><i>gest<\/i><i>\u00a0support.\u00a0<\/i><i>The<\/i><i>\u00a0worse\u00a0<\/i><i>time<\/i><i>\u00a0for him was when<\/i><i>\u00a0I was hospitalized<\/i><i>\u201d<\/i><\/p>\n<h2><b>W<\/b><b>hy<\/b><b>\u00a0do people get<\/b><b>\u00a0sclerosis and\u00a0<\/b><b>what are the chances of getting it?<\/b><\/h2>\n<p>The mystery of how\u00a0patients\u00a0develop\u00a0sclerosis and why it affects certain people has\u00a0not\u00a0yet\u00a0been\u00a0discovered, but a lot of research has been done in this area. Both genetic and environmental factors are involved. Environmental factors that\u00a0affect\u00a0the diagnosis of sclerosis are difficult to\u00a0determine. However, studies have shown that the farther away from the equator you live, the greater your chance of being diagnosed with sclerosis. Research also shows that people who smoke also have a greater\u00a0risk\u00a0of\u00a0developing\u00a0sclerosis.<\/p>\n<p>The country with the most cases of sclerosis is Canada.\u00a0At last count from\u00a02014\u00a0there were about\u00a077,000 cases of sclerosis. Of these, approximately\u00a075%\u00a0were women.\u00a0There\u00a0is not a\u00a0known reason\u00a0why women are more prone to sclerosis\u00a0than men\u00a0are. It has also been observed that there are genetic\u00a0factors. If a twin\u00a0is\u00a0a\u00a0Monozygotic\u202ftwin\u00a0( Identical\u00a0twin),\u00a0and\u00a0one\u00a0of them\u00a0has sclerosis, then the likelihood that the other will get it,\u00a0is\u00a0about 25-30%.<\/p>\n<p>The genetic factors involved are many, and research shows that there are 150 genes that are so-called risk genes. If you carry\u00a0one\u00a0of these genes, you are at risk\u00a0of developing sclerosis.<\/p>\n<p><i>\u201c<\/i><i>The doctors ha<\/i><i>ve<\/i><i>\u00a0become very good at diagnosing\u00a0<\/i><i>sclerosis\u00a0<\/i><i>today, and that is why there are a lot of young people, especially girls who are being diagnosed. In fact<\/i><i>,<\/i><i>\u00a0we still don\u2019t know<\/i><i>\u00a0why\u00a0<\/i><i>people are being diagnosed<\/i><i>, there is no one in my family who has the diseas<\/i><i>e\u201d<\/i><\/p>\n<p><i>\u201c<\/i><i>It is known that children of\u00a0<\/i><i>parents with\u00a0<\/i><i>sclerosi<\/i><i>s<\/i><i>\u00a0have a<\/i><i>n increased risk\u00a0<\/i><i>of<\/i><i>\u00a02%<\/i><i>\u00a0whereas<\/i><i>\u00a0siblings of\u00a0<\/i><i>some<\/i><i>one with sclerosis<\/i><i>\u00a0have 5% chance of having it. But\u00a0<\/i><i>we<\/i><i>\u00a0<\/i><i>don\u2019t\u00a0<\/i><i>know why it appears in a family<\/i><i>\u201d<\/i><\/p>\n<h2><b>How<\/b><b>\u00a0does the<\/b><b>\u00a0<\/b><b>D<\/b><b>anish<\/b><b>\u00a0<\/b><b>S<\/b><b>clerosis\u00a0<\/b><b>A<\/b><b>ssociation make it easier to live with sclerosis?<\/b><\/h2>\n<p>The\u00a0Sclerose\u00a0Association currently consists of a Board of Directors,\u00a0committees and\u00a0local departments.\u00a0There are 50 local departments\u00a0of across the kingdom of Denmark.\u00a0The largest local department is Copenhagen \/ Frederiksberg, which is the local department to which Jette is affiliated.<\/p>\n<p><i>\u201c<\/i><i>Our local department, which is Frederiksberg and Copenhagen, has<\/i><i>\u00a0hosted the event\u00a0<\/i><i>\u2018<\/i><i>Walk and<\/i><i>\u00a0talk<\/i><i>\u2019<\/i><i>\u00a0since 2010.<\/i><i>\u00a0W<\/i><i>e consist of a board of 7 people + an accountant. We donate o<\/i><i>ne half of our\u00a0<\/i><i>profits from Walk and Talk, directly\u00a0<\/i><i>to<\/i><i>the association and the other half to\u00a0<\/i><i>our local department<\/i><i>, and we use it\u00a0<\/i><i>to<\/i><i>\u00a0benefit our members<\/i><i>\u201d<\/i><\/p>\n<p><i>\u201c<\/i><i>These benefits<\/i><i>\u00a0include<\/i><i>\u00a0events and presents. For example<\/i><i>,<\/i><i>we\u00a0<\/i><i>have\u00a0<\/i><i>just hosted\u00a0<\/i><i>a lecture\u00a0<\/i><i>by<\/i><i>\u00a0Peter Lund Madsen<\/i><i>\u00a0(Danish doctor,\u00a0<\/i><i>neurologist<\/i><i>\u00a0and\u00a0<\/i><i>writer)<\/i><i>, and t<\/i><i>his was a very popular even<\/i><i>t<\/i><i>\u201d<\/i><\/p>\n<p><i>\u201c<\/i><i>We\u00a0<\/i><i>are hosting an event in the<\/i><i>\u00a0fall\u00a0<\/i><i>where our members can\u00a0<\/i><i>try<\/i><i>N<\/i><i>M<\/i><i>E<\/i><i>S training<\/i><i>\u00a0(<\/i><br \/>\n<i>Neuromuscular Electrical Stimulation<\/i><i>)<\/i><i>\u201d<\/i><\/p>\n<p><i>\u201c<\/i><i>We<\/i><i>\u00a0will\u00a0<\/i><i>provide\u00a0<\/i><i>them with<\/i><i>\u00a0special clothes for\u00a0<\/i><i>people<\/i><i>\u00a0to wear.\u00a0<\/i><i>When people are fitted<\/i><i>,\u00a0<\/i><i>they<\/i><i>\u00a0must wear a\u00a0<\/i><i>vest\u00a0<\/i><i>with<\/i><i>\u00a0electrode<\/i><i>s connected<\/i><i>\u00a0and it must\u00a0<\/i><i>fit their\u00a0<\/i><i>upper body<\/i><i>.<\/i><i>\u00a0<\/i><i>Y<\/i><i>ou&#8217;ll get a<\/i><i>n\u00a0<\/i><i>arm belt<\/i><i>\u00a0on each arm<\/i><i>,<\/i><i>\u00a0and then you get affiliated with a coach who shows wh<\/i><i>ich exercises<\/i><i>\u00a0to do.\u00a0<\/i><i>You<\/i><i>\u00a0<\/i><i>have\u00a0<\/i><i>to<\/i><i>\u00a0do\u00a0<\/i><i>16 different exercises, which you<\/i><i>r coach<\/i><i>\u00a0<\/i><i>will\u00a0<\/i><i>walk<\/i><i>\u00a0you<\/i><i>\u00a0through in 20 minutes<\/i><i>.\u00a0<\/i><i>This method of training is the\u00a0<\/i><i>equivalent to training 3 hours in a fitness center<\/i><i>\u201d\u00a0<\/i><\/p>\n","protected":false},"excerpt":{"rendered":"<p>&#8222;There is no one in my family who has the disease.\u00a0So why did I get sclerosis? I have lived a normal life\u00a0with\u00a0my husband, 2 children our dog etc. Then, suddenly &#8211; bang.&#8220; This\u00a0month\u00a0we have\u00a0chosen\u00a0to focus on\u00a0Multiple Sclerosis (MS).\u00a0We\u00a0have\u00a0interviewed a member of the Sclerosis\u00a0Association, who\u00a0suffers\u00a0from multiple sclerosis. We have talked about her background, what sclerosis is [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":2399,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[60,38],"tags":[],"class_list":["post-2053","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-interviews-de","category-neuigkeiten"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.3 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>\u201eIch werde nicht an der Krankheit sterben, aber mit ihr\u201c - Kibodan<\/title>\n<meta name=\"description\" content=\"Diesen Monat haben wir uns entschieden, uns auf Multiple Sklerose (MS) zu konzentrieren. 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